I was asked to consider two questions or themes. 1) Ways to increase mobility both in and out of the home and 2) Dealing with loved ones refusal to accept limitations.
To begin preparation I decided to read my blog posts on Parkinson's. Russ was diagnosed in 2011, but I didn't begin writing about it until 2015. I have 7 years of entries all printed off and put in a 3-ring binder. That's about 1 1/2" of paper or 100+(200?) pages just on Parkinsons. As I have read the entries, I reflect back and I'm proud of us. We honestly did the best we could.
I feel fairly confident that two strategies can cover both topics. Communication and Love Language (i.e. personality type). Both are necessary for working as a team. I am aware that some people who struggle with health or age frailties do it alone. Russ and I had the gift of partnership. But that partnership required work. It required that we communicate, both of us needed to talk and listen. It required each us to be aware of how the other related to the world around them. Like I said, hard work!
I got word today from my friend Mary that her husband died yesterday morning. Mike had Parkinsons; specifically MSA like Russ had. My heart breaks for her. When you walk beside your person and watch the trickle of small good-byes, you think you are prepared...not. The pain digs deep in your soul.
I am regaining my footing, but each time I hear of a PD friend taken by complications of Parkinson's, I falter.
To all suffering - Peace Love Hope