It was not until after Russ' death that I began a support group for others, finally understanding how much that connection would have helped me and provided some much needed social support. Some people in our world could not be supportive, each for their own reason. Support groups are not there 'to fix', but to validate and help the caregiver to live wholeheartedly.
Support groups help us to honor sadness a little more and realize every day does not have to be about smiles. They are about authenticity and truth, they are about connection. They are about allowing our heart to be shared. We all 'do life' differently. And yes, we all 'do sick' differently as well...and that's OK.
i felt pummeled-
yesterday
today
and trying not to worry about tomorrow
live in the moment they say
it’s an ever-changing game
of keeping up with time
it’s a challenge
a never ending challenge
of socialization and caring
we never chose parkinson’s
it chose us
we weren’t prepared
just loving
a daily rally call was needed
to encourage us
a call of support
and it went both ways…
ME and YOU, a team
i hear you
i see you
i support you
i honor you
in peace love and hope
i honor all caregivers and those they care for